#10: Change Your Words, Change Your World With Susan Wranik

#10: Change Your Words, Change Your World With Susan Wranik

Change Your Words, Change Your World

In this enlightening episode of Broken Beautiful Me - Stories of Hope, Gratitude & Resilience, host Kelly Buckley welcomes Susan I. Wranik, a highly experienced speech-language pathologist and communication specialist. Together, they explore how the words we choose and the power of our voice can not only shape our personal and professional outcomes but also profoundly transform our lives.

With over 30 years of experience in speech pathology and communication coaching, Susan has worked with a wide range of clients—from individuals overcoming speech and language disorders to public speakers and professionals striving to become more effective communicators. Her unique blend of healthcare expertise and leadership in public speaking offers listeners invaluable insights into how the language we use—both verbally and non-verbally—impacts our relationships, careers, and overall success.

In this episode, Susan shares her expertise on:

  • The psychology of communication: How the words we speak and even the tone we use can affect the way we feel, act, and perceive ourselves.
  • Overcoming communication barriers: Practical techniques for improving articulation, clarity, and confidence, especially for those facing speech challenges or public speaking fears.
  • Mastering vocal impact: Learn how to fine-tune your voice to make your message more persuasive, engaging, and memorable.
  • Crafting intentional communication: Discover the power of choosing words that align with your goals and values, both in personal and professional settings.

Susan's approach goes beyond mere speaking skills—she emphasizes the importance of being intentional with every word, ensuring that your message resonates deeply with your audience. Whether you are a leader in a corporate setting, a public speaker, or someone looking to communicate more effectively in your everyday life, this episode will give you the practical tools to "change your words and change your world."

Tune in to discover how mastering the power of voice can lead to profound personal transformation, helping you unlock new levels of confidence, connection, and success.

Connect with Susan I. Wranik:

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00:00:01
Well, hello, everybody,

00:00:02
and welcome to another

00:00:03
episode of Broken Beautiful Me.

00:00:07
I'm Kelly Buckley, your host,

00:00:08
and I am so honored today

00:00:10
to have Susan Iranek.

00:00:13
She is a Milwaukee, Wisconsin native,

00:00:16
a national speaker, author, linguist,

00:00:19
and medical professional

00:00:20
who is passionate about

00:00:21
clear communication and quality of life.

00:00:25
Initially,

00:00:25
she was a translator and

00:00:26
interpreter for the Italian

00:00:28
Ministry of Defense,

00:00:30
and she moved then to

00:00:31
clinical work as a speech

00:00:32
language pathologist.

00:00:34
I'm just going to give a

00:00:35
brief overview of some of

00:00:37
her career highlights,

00:00:38
which include a TEDx talk

00:00:40
on the power of words,

00:00:41
and we're going to expand

00:00:43
on that in our conversation.

00:00:45
She's part of communication

00:00:46
clubs for people with

00:00:48
Parkinson's disease.

00:00:49
a speech consultant for

00:00:51
multiple communities

00:00:52
serving neurodivergent adults.

00:00:56
Publications and recordings

00:00:58
include Don't Forget to Say Thank You,

00:01:00
Twenty Thoughts to Guide

00:01:01
You Personally and

00:01:02
Professionally Through Life,

00:01:04
and The Confidence Quotient,

00:01:05
which is a recording on

00:01:07
women's communication styles.

00:01:09
She has a BS and an MS at

00:01:11
Georgetown University in

00:01:13
Italian and Linguistics,

00:01:15
and an MA at the George

00:01:16
Washington University for

00:01:18
Speech Language Pathology.

00:01:20
She's had many media appearances,

00:01:23
including ABC, CBS, Public Radio,

00:01:26
the Smithsonian Institute,

00:01:27
and National Geographic.

00:01:29
She speaks on various subjects,

00:01:32
including aphasia, better brain health,

00:01:35
clear communication, dementia, ethics,

00:01:37
and eating.

00:01:39
So she is currently in

00:01:40
private practice in the Washington, D.C.

00:01:43
metropolitan area.

00:01:44
So welcome, Susan, to the show.

00:01:46
Thank you so much for being here.

00:01:49
Kelly,

00:01:49
thank you so much for your gracious

00:01:51
invitation.

00:01:52
Delighted to share.

00:01:54
So Susan, just to begin with,

00:01:56
could you just share a little bit,

00:01:59
expand on your bio and

00:02:01
explain a little bit about

00:02:02
your background for our

00:02:03
listeners who may not know

00:02:04
about your work?

00:02:07
My work in a nutshell is

00:02:09
giving voice to other people's voices.

00:02:11
That's my mission.

00:02:13
That's my goal.

00:02:14
I started out early in life.

00:02:16
We don't always travel the

00:02:18
path that we chart for ourselves.

00:02:20
I did major in Italian,

00:02:22
didn't know that I'd ever

00:02:23
get a job where I'd be able

00:02:24
to use that and survive, but I did.

00:02:27
And it put me in contact

00:02:29
with over a hundred and

00:02:30
twenty eight countries and

00:02:32
almost as many languages.

00:02:34
You learned a lot.

00:02:34
I was the only female

00:02:37
American civilian in an all

00:02:38
male military environment.

00:02:41
So you learned a lot about

00:02:42
gender early in the game,

00:02:43
way back in the game,

00:02:45
learned a lot about military.

00:02:47
You learn more about your

00:02:48
own culture when you work

00:02:50
in someone else's,

00:02:50
which I did for thirty years.

00:02:52
And then I decided to take

00:02:54
it to the next level.

00:02:55
I always wanted to get into health care.

00:02:57
I wasn't quite certain what, where.

00:03:00
And then when I was doing my

00:03:01
master's in Italian, I

00:03:04
took a course in

00:03:05
psycholinguistics and came

00:03:07
across speech-language pathology.

00:03:09
And that's where I landed.

00:03:11
And now I'm able to hone my skills.

00:03:14
It's only good if you speak

00:03:16
another language if you can

00:03:17
do something else in it.

00:03:18
And being in speech-language

00:03:20
pathology has given me that

00:03:21
opportunity to treat people

00:03:23
in other languages, other cultures.

00:03:26
That's beautiful.

00:03:27
So I'm really intrigued by this work.

00:03:30
So can you share a little

00:03:32
bit more about the power of

00:03:33
words and how you work with

00:03:36
your clients to really

00:03:38
capitalize on that?

00:03:40
Absolutely.

00:03:41
First of all,

00:03:42
let me preface it by saying

00:03:44
that words count because

00:03:46
they condition how we act, how we react,

00:03:49
and how we cause others to act and react.

00:03:52
Everything in life,

00:03:53
everything in life is the

00:03:54
result of communication.

00:03:56
be it successful or

00:03:58
unsuccessful communication.

00:03:59
We witness that every day.

00:04:01
It's not just the words,

00:04:03
but the words are important

00:04:05
because they cause other people to feel.

00:04:07
And that's what people realize.

00:04:09
That's what they remember.

00:04:11
And that's what encourages

00:04:12
other people to open up and to converse,

00:04:14
to start the conversation.

00:04:16
As you know,

00:04:17
we're living in a very lonely

00:04:18
society right now.

00:04:20
As our Surgeon General, Dr. Murthy says,

00:04:23
And he invites people to

00:04:24
recommit to the power of

00:04:26
human connection.

00:04:27
And we do that through words,

00:04:29
not always through technology.

00:04:31
I like the voice.

00:04:33
I don't know of anybody who

00:04:34
volunteered to be stuck in

00:04:35
a technological response service.

00:04:39
Press one, press two,

00:04:40
press three before your

00:04:42
patience wears out.

00:04:44
So that's how I got into it.

00:04:46
And then I went into speech

00:04:48
language pathology again.

00:04:50
speech-language pathology

00:04:51
spans the gamut from neonates to the,

00:04:54
I refer to them as older

00:04:56
adults and older adults,

00:04:58
because being a senior,

00:05:01
I don't like the term.

00:05:02
I'm not crazy about geriatric ether.

00:05:04
And I like adult and older adult.

00:05:07
You know,

00:05:08
you become a little bit more

00:05:09
sensitive when you're

00:05:09
wearing the term yourself.

00:05:11
And there's a huge need.

00:05:14
I mean,

00:05:14
you're dealing with people with

00:05:15
cognitive shift and helping

00:05:18
them to express themselves where

00:05:20
Verbal expression becomes

00:05:21
very much a challenge when

00:05:22
they can't find their words.

00:05:25
People with Parkinson's who

00:05:26
haven't got the volume,

00:05:28
and yet we can help them.

00:05:29
And it's just so exciting to

00:05:31
have people believe in themselves,

00:05:32
to have that esteem,

00:05:34
to want to go forward.

00:05:36
I always say the three most

00:05:38
important words in the

00:05:39
English language are, I want, I can,

00:05:42
and I will.

00:05:43
And when you're dealing in healthcare,

00:05:44
you have to get people to want.

00:05:46
You have to play to that.

00:05:47
They're not furniture.

00:05:48
You can't just fix them.

00:05:50
They have to want to participate.

00:05:52
They have to want to be with you.

00:05:54
And then you have to guide

00:05:54
them and show them how they

00:05:56
can and let them know that

00:05:58
that you're not selling fried air.

00:05:59
You know, you're there.

00:06:00
You have some treatments that will work.

00:06:02
And then the most beautiful

00:06:03
thing is to see these

00:06:04
people get pumped out and

00:06:06
to be rolling the wheelchairs and saying,

00:06:08
yes, yes, I can do this.

00:06:10
It's just it's so exhilarating.

00:06:12
I love my job.

00:06:13
Can you tell?

00:06:14
I can tell you love your job.

00:06:16
And it must be such a

00:06:18
journey for them to come

00:06:20
into their own power.

00:06:21
And despite, you know,

00:06:23
some physical limitation

00:06:24
that they may have regardless,

00:06:26
because of some diagnosis

00:06:27
that they can still find a

00:06:29
way to communicate clearly

00:06:31
and feel really good in their own skin.

00:06:36
You know, because in a chronic illness,

00:06:38
you mentioned Parkinson's,

00:06:42
it must be such a challenge

00:06:44
for them to come to terms

00:06:45
with that and you give them

00:06:47
their power back.

00:06:49
And one of the first things

00:06:50
we do is I say we don't use

00:06:52
past tense ever.

00:06:54
So tell me who you are.

00:06:55
And they can say I'm a

00:06:57
retired or I'm a former,

00:06:59
but it has to be present.

00:07:00
I always say we don't have

00:07:01
any wases in this group.

00:07:04
It takes them a while,

00:07:06
but it's wonderful with the affirmations.

00:07:10
And it's true for women.

00:07:11
It's true for all of us.

00:07:12
A lot of the, what shall I say,

00:07:14
the shortcomings in

00:07:16
communication come from our

00:07:17
own lack of belief, our own self-esteem.

00:07:21
We have to take the power.

00:07:22
Nobody's going to give it to you.

00:07:24
We have to take that power.

00:07:26
And you just mentioned affirmations.

00:07:29
And I actually,

00:07:30
I have a list of

00:07:31
affirmations that I say every morning,

00:07:35
you know,

00:07:35
just changing that internal

00:07:37
conversation that I am

00:07:38
having with myself.

00:07:40
And I've used those for a

00:07:41
number of years to kind of

00:07:44
reframe that internal conversation and

00:07:48
when I was navigating some

00:07:49
very difficult times in my life.

00:07:52
What can you say about

00:07:53
affirmations for people in

00:07:54
different circumstances in their lives?

00:07:57
What would you say to that?

00:08:00
First and foremost,

00:08:01
the most important words

00:08:02
that we use are the words

00:08:03
we use with ourselves.

00:08:06
We have to build ourselves up.

00:08:08
We can listen to other people,

00:08:09
but it has to come from

00:08:11
within that drive.

00:08:12
I want, I can, I will.

00:08:15
It's not easy.

00:08:17
Life isn't easy.

00:08:18
Life is about experience.

00:08:19
But there's a way to get there.

00:08:22
You just have to stick with it.

00:08:23
It's like anything else.

00:08:25
Repetition, repetition, repetition.

00:08:28
Eventually it sticks.

00:08:30
And changing the words that we use.

00:08:32
I mean,

00:08:32
I was just reading an article this

00:08:33
morning where they're

00:08:36
changing post-traumatic stress disorder.

00:08:38
There's a big discussion going on.

00:08:40
They don't want to call it PTSD anymore.

00:08:42
They want to call it PTSI.

00:08:44
Have you heard about that?

00:08:45
Post-traumatic stress injury.

00:08:47
It sounds so much better.

00:08:48
We used to talk about mental illness.

00:08:50
We just had a huge health

00:08:51
expo where the theme was

00:08:53
mental wellness is for everyone.

00:08:55
It's about mental health.

00:08:56
It's not mental illness.

00:08:58
It's mental health,

00:08:59
and it pertains to everyone.

00:09:00
Just hearing it flipped, turned that way,

00:09:03
makes you want to sit up and listen,

00:09:05
makes you want to pay attention.

00:09:07
And especially from other generations,

00:09:09
our parents' generations and before them,

00:09:12
if you had any upset, any mental issue,

00:09:17
be it bipolar,

00:09:17
which they didn't know at the time,

00:09:19
whatever it was,

00:09:21
you wouldn't get help for it.

00:09:22
Are you kidding?

00:09:22
You'd lose your job.

00:09:23
And now the idea is to understand,

00:09:27
to extend a hand and to

00:09:28
help everyone be their best selves.

00:09:32
So in words matter.

00:09:34
That is, that's powerful.

00:09:37
And just the change of the

00:09:38
word from disorder to injury is, I mean,

00:09:42
that is impactful.

00:09:44
And it gets better.

00:09:44
They haven't approved it yet.

00:09:46
They haven't approved it yet.

00:09:47
Can you imagine?

00:09:48
There's a discussion on this

00:09:50
because they don't have evidence.

00:09:52
And I'm thinking, oh my goodness.

00:09:54
We don't have evidence that

00:09:55
if a parent holds,

00:09:57
caresses a child who's

00:09:58
fallen and massages the

00:09:59
temple and whispers sweet

00:10:01
nothings in the ear,

00:10:02
we don't have scientific

00:10:04
data that will say that

00:10:05
that will calm that child,

00:10:07
yet we know that it will.

00:10:10
Sometimes common sense isn't so common.

00:10:13
No, that's very true.

00:10:16
And back to the mental

00:10:20
illness versus mental health, again,

00:10:22
that just that choice of

00:10:23
the word is it gives people

00:10:26
permission because like you said,

00:10:28
and it wasn't really that

00:10:29
many years ago where it was

00:10:32
kind of taboo to say, I'm struggling.

00:10:34
I am having a hard time.

00:10:36
I am not okay.

00:10:38
And it's that doesn't mean

00:10:40
that the path forward is

00:10:42
not a positive one of, you know, recovery,

00:10:46
but you were afraid to come forward.

00:10:49
I remember even, you know,

00:10:51
when I started early in my

00:10:53
own grief journey.

00:10:54
So that was in two thousand and nine.

00:10:57
And it was a lot of people

00:10:58
were not talking about recovery.

00:11:01
the power of your words or

00:11:04
it's okay for you to be

00:11:06
where you are right now and,

00:11:08
and processing emotions.

00:11:09
It was, I,

00:11:10
I really had to seek out and that was,

00:11:13
you know, not really that long ago.

00:11:14
I really had to seek out

00:11:16
groups that were starting

00:11:18
to have different

00:11:18
conversations about grief and,

00:11:22
And the use of affirmations

00:11:25
and gratitude and,

00:11:27
and things to work through

00:11:28
difficult times, you know, Pete,

00:11:29
the conversation was more about, well,

00:11:32
gratitude is just, you know,

00:11:33
when when everything's going well, well,

00:11:36
the real power in in words of gratitude.

00:11:40
is when things are maybe a

00:11:42
bit of a struggle from day to day.

00:11:44
That's when the gratitude

00:11:45
really kicks in and helps

00:11:46
you reframe your mindset

00:11:50
and how you look at your

00:11:51
current situation.

00:11:54
So that brings us to don't

00:11:56
forget to say thank you.

00:11:58
I really want to hear more

00:11:59
about this because

00:12:01
You have a publication.

00:12:03
Don't forget to say thank you.

00:12:04
Twenty thoughts to guide you

00:12:06
personally and

00:12:07
professionally through life.

00:12:09
So please tell us more about that,

00:12:10
because I I'm all all about

00:12:13
the gratitude.

00:12:14
That was this book is a catharsis.

00:12:17
It's dedicated to my mother.

00:12:18
She died when she was sixty

00:12:20
four years old.

00:12:20
I'm an only child.

00:12:21
And I was thinking she's my best friend.

00:12:23
Now, who am I going to talk to?

00:12:25
And I started writing down

00:12:26
everything I could remember,

00:12:27
everything she ever told me.

00:12:29
And I didn't get them all,

00:12:30
but I got twenty.

00:12:31
And I told stories for each one.

00:12:34
There's a vignette of how I

00:12:35
learned that lesson in the first chapter.

00:12:38
One page one is tell the truth.

00:12:39
It's just easier.

00:12:42
And I told about the silent treatment,

00:12:44
how I violated that.

00:12:45
But I have to tell you one

00:12:46
of the most important

00:12:47
stories which speaks to the

00:12:49
power of words.

00:12:50
My mother was a professional

00:12:52
ballet dancer when I was

00:12:54
she was headlining at the age of fifteen.

00:12:56
When I was born,

00:12:58
my upper body was paralyzed.

00:12:59
So she was very difficult delivery.

00:13:02
And so she was very

00:13:03
concerned about getting me

00:13:05
to have bilateral movements.

00:13:06
So she put me in dance classes right away.

00:13:08
I was shy.

00:13:10
I was timid.

00:13:11
I was awkward.

00:13:11
I was awful.

00:13:13
And she came to the first

00:13:14
recital at the conservatory

00:13:16
where she was a star.

00:13:18
And here she is watching her

00:13:20
progeny denigrate the family name.

00:13:22
I wasn't bad.

00:13:24
I gave new definition to horrific, okay?

00:13:27
But she sat there, bless her heart,

00:13:28
for every sixty minutes.

00:13:31
Each one of those minutes,

00:13:32
as only a parent could.

00:13:33
And at the very end, as we walked out,

00:13:34
I looked up at her and I said,

00:13:36
so how was it, it being my dancing?

00:13:38
And she looked down at me,

00:13:39
her eyes twinkling, cover girl smile,

00:13:42
never missed a beat.

00:13:43
She said, Susan,

00:13:45
your potential for

00:13:46
improvement is infinite.

00:13:49
Think about the words.

00:13:50
Think about what parents say to children,

00:13:53
the things that we could

00:13:54
say instead of denigrating

00:13:56
them and trying to

00:13:58
challenge them by telling

00:13:59
them how awful they are and

00:14:01
how much better everyone else is.

00:14:03
Instead, she came back with that.

00:14:05
And I've never forgotten.

00:14:06
It's become my byline.

00:14:08
Oh, it's beautiful.

00:14:09
Isn't it beautiful?

00:14:10
It's beautiful.

00:14:13
That's what this book is about.

00:14:15
It's words of encouragement.

00:14:16
It's nothing that most of us

00:14:18
haven't ever heard before,

00:14:20
but we need reminders sometimes.

00:14:24
And these are all based on

00:14:26
things that you learned from your mother,

00:14:27
which makes it even more special.

00:14:31
What's another one?

00:14:32
If you can just expand.

00:14:34
There's always a nice way to

00:14:36
get your point across.

00:14:38
Your job is to find it.

00:14:41
And as RBG said, Ruth Bader Ginsburg,

00:14:44
she said,

00:14:45
it's possible to disagree and

00:14:47
not be disagreeable.

00:14:48
And that's something we need

00:14:49
to learn because in this world,

00:14:51
We're going after the message,

00:14:53
but we're really attacking the messenger.

00:14:55
And what we have to do is

00:14:56
change our words to

00:14:59
encourage other people to

00:15:00
talk and to let them know

00:15:01
that the phrase now is to be seen,

00:15:03
but they're being heard.

00:15:05
And to invite,

00:15:06
let other people know that

00:15:07
they're being heard,

00:15:08
and then maybe they'll listen to you.

00:15:09
We're not proselytizing.

00:15:11
People are holding steadfast

00:15:13
to their beliefs, and that's okay,

00:15:14
and we can hold steadfast to ours.

00:15:16
But sometimes in just

00:15:17
listening to the other person,

00:15:19
you're willing to

00:15:20
embrace a change to

00:15:22
understand how another person thinks.

00:15:25
Doesn't mean you're going to agree.

00:15:26
It just means that you're

00:15:28
willing to embrace otherness.

00:15:30
And that's how we learn.

00:15:31
And that's how we grow.

00:15:33
Do you think that as a

00:15:36
society that we are moving

00:15:37
towards that greater understanding?

00:15:41
I mean,

00:15:42
I think we look around our world

00:15:45
today and people are very

00:15:48
divided in their opinions.

00:15:50
And it seems like some

00:15:52
people just don't want to,

00:15:54
we don't want to listen to each other.

00:15:56
Do you think that- I think

00:15:57
we don't know how.

00:15:59
do you think we're learning

00:16:01
how are we getting,

00:16:02
are we moving towards that?

00:16:04
I would hope.

00:16:05
I mean, that's what I hope.

00:16:06
I, I,

00:16:07
I try to listen to other people's

00:16:08
opinions because I think, you know, um,

00:16:11
my opinion is not the only valid one.

00:16:13
And yes,

00:16:14
I may not agree with everything

00:16:15
that you say, but your,

00:16:17
your opinion is just as important as,

00:16:19
as mine.

00:16:19
That's kind of my view of life.

00:16:22
And you think that,

00:16:23
that other people were

00:16:24
coming around to that conclusion?

00:16:27
I think many would like to.

00:16:28
I think they don't know how.

00:16:29
I think the media is trying

00:16:31
to get there by bringing

00:16:32
people in from all walks of life.

00:16:34
And they find when they have

00:16:35
everybody at a table, they're not,

00:16:38
they're not snipping at each other.

00:16:39
They're listening.

00:16:40
They're hearing the other person out.

00:16:41
They're not fighting.

00:16:42
They're not arguing.

00:16:43
You're not going to do it on text.

00:16:45
I'm sorry.

00:16:45
You got to do it face to

00:16:46
face because there's so

00:16:48
much more to communication

00:16:49
than the words.

00:16:50
It's looking at that.

00:16:51
You can look at a person and

00:16:53
instantly we make a decision.

00:16:54
That's not bad.

00:16:55
That's fight or flight.

00:16:56
That's survival skill.

00:16:58
And then the rest of that

00:16:59
relationship is based on

00:17:01
supporting or changing your

00:17:05
opinion of that person and

00:17:07
getting to know that person.

00:17:08
It's how the person looks, what they say,

00:17:10
what they do,

00:17:11
how everything works

00:17:12
together to support or

00:17:13
negate or to crack what

00:17:15
their message might be.

00:17:18
We need to recommit to the

00:17:20
power of human connection

00:17:22
And while technology is great,

00:17:24
it's not the only thing.

00:17:26
I don't live for robotic society.

00:17:29
It's got its place.

00:17:30
It can help,

00:17:31
but we really have to learn

00:17:32
how to be better with each other.

00:17:35
And, you know, I think that goes back,

00:17:37
you were talking about this

00:17:38
surge in general and this

00:17:39
epidemic of loneliness that we have,

00:17:41
even though we are far more

00:17:43
connected as a world than

00:17:44
we've ever been before, but we have,

00:17:48
and then, you know, it also leads into,

00:17:50
you know,

00:17:51
post COVID world that we still

00:17:54
feel so disconnected and

00:17:55
that growing of community,

00:17:57
that face-to-face community

00:17:59
where we've kind of made it,

00:18:01
we've distanced ourselves

00:18:02
from that for a variety of reasons,

00:18:05
We have to find our way back.

00:18:08
What would be some words,

00:18:10
if you are in a

00:18:10
conversation with someone

00:18:12
who has a different opinion than you,

00:18:15
what would be some words

00:18:16
that would help find common ground?

00:18:21
If you were guiding me to

00:18:23
have a conversation with

00:18:24
someone that I disagreed with,

00:18:26
what words would you

00:18:27
encourage that I use to

00:18:29
find common ground with that person?

00:18:32
Start with thank you.

00:18:33
Thank you for sharing that.

00:18:35
Can you tell me more?

00:18:36
Help me understand.

00:18:39
Help me understand.

00:18:39
Let them know that you're

00:18:40
willing to listen.

00:18:42
And when the person calms

00:18:43
down and they feel that

00:18:45
they're not because it's

00:18:46
too passionate entity,

00:18:48
too passionate people.

00:18:49
And when they feel that the

00:18:50
other person is favorably

00:18:51
disposed to hearing,

00:18:53
then they'll dial it down

00:18:54
and then they might return the courtesy.

00:18:57
Well, tell me why you feel the way you do.

00:19:01
Invite the other person in.

00:19:02
And apropos of your comment

00:19:04
about we're so connected,

00:19:05
I take exception to that.

00:19:07
We're plugged in more than

00:19:08
we've ever been before.

00:19:10
But we've never been as apart as we are.

00:19:13
I mean, think about the older people.

00:19:15
Remember when you turned on

00:19:16
the television and it

00:19:17
turned on and you had

00:19:19
vertical or horizontal volume channel?

00:19:21
Not much.

00:19:22
OK, but we knew.

00:19:23
Well,

00:19:23
we've got older people now that can't

00:19:26
watch television anymore

00:19:27
because they can't

00:19:28
manipulate three different controls.

00:19:31
Remember when the phone rang

00:19:32
and you knew where it was, what it was,

00:19:34
and you knew what to do with it.

00:19:36
We didn't need instructions

00:19:37
on how to make a call anymore.

00:19:39
We have done a disservice in

00:19:41
doing a service.

00:19:43
We've done an inordinate disservice,

00:19:45
especially to people from

00:19:47
other generations at the

00:19:48
most important part,

00:19:50
time in their life when

00:19:50
they need to be with other people.

00:19:52
And apropos of inviting the

00:19:54
conversation beyond change of opinion,

00:19:58
Let's talk about some of the

00:19:59
people that are having

00:20:00
difficulty expressing themselves.

00:20:03
People who are having a cognitive shift.

00:20:05
They might tell you, I see bugs,

00:20:07
I see bugs.

00:20:08
Well, maybe they do.

00:20:09
You don't argue with them.

00:20:11
You validate their concern.

00:20:13
You don't say, oh, I see them too.

00:20:15
You say, where are those bugs?

00:20:17
Are they good bugs or bad bugs?

00:20:19
Do you like them?

00:20:19
You know, yes or no.

00:20:20
Keep it simple.

00:20:21
And if you want to go away, help me.

00:20:23
Let's go away from those bugs.

00:20:25
Let's go someplace where you feel safe.

00:20:27
People need to learn how to talk to,

00:20:30
if you can speak to someone

00:20:31
who's experiencing a

00:20:34
cognitive shift or a dementia,

00:20:35
I say a dementia because

00:20:36
there's so many kinds,

00:20:38
but they all have certain hallmarks.

00:20:40
If you can learn how to

00:20:41
speak to somebody

00:20:43
experiencing those challenges,

00:20:45
you can speak with just

00:20:45
about anybody because you

00:20:47
have to be a very good

00:20:48
listener and you have to

00:20:50
watch what people say

00:20:52
because they will tell you

00:20:53
so much in their actions

00:20:54
that they can't get across

00:20:55
in their words.

00:20:58
That is so true.

00:21:00
And I know we cared for my

00:21:05
husband's father with dementia.

00:21:07
And I remember I searched

00:21:10
for a couple of months for

00:21:13
a remote for the television.

00:21:15
He loved to watch the news.

00:21:17
He loved to watch National

00:21:18
Geographic shows and the

00:21:20
Smithsonian Channel.

00:21:22
And he didn't know how to

00:21:23
turn on the television.

00:21:24
You're absolutely right.

00:21:25
We had limited, and he...

00:21:30
So we tried to work and find

00:21:32
tools that would help him

00:21:34
still maintain that

00:21:35
independence and do things

00:21:37
that he loved to do.

00:21:38
But the world was not set up

00:21:40
to be easy for that.

00:21:42
And so you're absolutely

00:21:45
right in what you say,

00:21:46
because as a family,

00:21:47
that was a huge struggle for us,

00:21:49
is trying to find a way to

00:21:52
make him feel whole and

00:21:54
make sure that he was still whole,

00:21:56
no matter what was happening.

00:21:58
And control.

00:21:59
And in control.

00:22:01
And one of the things that I

00:22:04
always smile when I think

00:22:05
about what my husband would

00:22:07
say to him is he would say, I got you,

00:22:09
dad.

00:22:10
When his dad would be having anxiety,

00:22:13
he would just kind of put

00:22:14
his hand on his shoulder and say,

00:22:16
I've got you, dad.

00:22:19
And that worked so well for

00:22:22
father and son to have that

00:22:24
relationship and it would

00:22:25
really calm him.

00:22:27
But I've got you just three

00:22:29
small words to say to

00:22:31
someone who's struggling, dementia or not,

00:22:35
the power of words, right?

00:22:37
The power of words to make

00:22:38
people feel safe.

00:22:40
We do a whole, in the Parkinson's group,

00:22:42
we do three word phrases.

00:22:44
Please join us.

00:22:45
I got you.

00:22:47
We have more.

00:22:50
That's saved for you.

00:22:51
Is that place free?

00:22:52
Saved for you.

00:22:56
And look at all the tragedy

00:22:57
that we have in the world

00:22:58
with the shootings.

00:22:59
That all starts every one of those.

00:23:00
If you go back,

00:23:01
every one of those individuals,

00:23:03
especially the young people,

00:23:04
it started with bullying.

00:23:05
How does bullying start?

00:23:07
It's by people putting other

00:23:09
people on alert that they don't fit.

00:23:11
They're not welcome.

00:23:12
They don't belong.

00:23:13
It's about the communication

00:23:14
and the unawareness.

00:23:16
They're not sitting at dinner.

00:23:17
They're not talking to one another.

00:23:18
They're not...

00:23:20
I did a placard the other

00:23:21
day on ten things to ask

00:23:22
your child when they come

00:23:23
home from school.

00:23:24
Start with, who did you have lunch with?

00:23:28
What did you learn today?

00:23:30
Was anybody unkind to you?

00:23:33
Did you see anybody be

00:23:34
unkind to somebody else?

00:23:35
What did you do?

00:23:36
Encourage this,

00:23:37
and adults need to learn this too.

00:23:39
I mean, we take it for granted,

00:23:40
but it's not as common as it used to be.

00:23:44
And think about,

00:23:46
I'm thinking in terms of

00:23:47
the healthcare world.

00:23:49
We have so many people who

00:23:50
are non-native English speakers.

00:23:52
And speaking multiple languages myself,

00:23:55
I know what it is to try to

00:23:56
twist your mouth into a

00:23:57
form to be understood by

00:23:59
the person who speaks that

00:24:02
language natively.

00:24:03
But when you're dealing with

00:24:04
people who are of a certain age,

00:24:06
they can't quite understand the cadence.

00:24:08
They can't quite understand the nuance.

00:24:10
No matter how fluent people are,

00:24:12
nuance is the last thing if

00:24:13
it ever arrives in the language.

00:24:15
And two great examples, you know,

00:24:16
when you're dealing with people in rehab,

00:24:18
you're dealing with limited time.

00:24:20
And so if you have somebody

00:24:22
come in and you've worked

00:24:23
so hard to get them to, I want, I can,

00:24:26
I will.

00:24:27
And then the direct service

00:24:28
provider comes in and says,

00:24:30
try to do as much as you can on your own.

00:24:32
And then I will help you.

00:24:34
Isn't that encouraging?

00:24:36
And then that comes in with

00:24:38
a different accent and says,

00:24:40
do it by yourself.

00:24:41
It's just so disheartening.

00:24:43
We have to,

00:24:44
and how do you train people in that?

00:24:47
How do you train people to

00:24:49
find the right words?

00:24:50
And these are people that

00:24:52
desperately need the help.

00:24:53
There are frontline workers.

00:24:55
And even you talked about grief.

00:24:57
And the comment I wanted to

00:24:59
make is with regard to words,

00:25:01
I just read this recently,

00:25:04
that grief is never

00:25:05
anything that we'll get over.

00:25:06
We don't get over grief.

00:25:08
We learned how to live with it.

00:25:09
We learned how to

00:25:09
accommodate and make it

00:25:11
part and parcel of our life experiences.

00:25:13
And

00:25:14
Again, the affirmation,

00:25:15
we learn to find the

00:25:17
richness in the loss and

00:25:19
having been made better for

00:25:21
what we had instead of

00:25:23
lamenting what we no longer do.

00:25:26
Yes,

00:25:26
it is a shift in in that conversation

00:25:29
for sure with grief and

00:25:32
that the whole basis of of this podcast,

00:25:37
Broken Beautiful Me,

00:25:38
is based on the Japanese art of Kintsugi,

00:25:42
where they repair porcelain

00:25:44
with gold filled plaster.

00:25:46
And thereby making that

00:25:48
broken piece more beautiful

00:25:50
and more valuable,

00:25:51
which that's part of what I

00:25:54
like to teach with the bereaved is that,

00:25:59
yes,

00:26:00
life has changed in a very dramatic way.

00:26:04
But that doesn't mean that

00:26:05
your life is not beautiful,

00:26:07
that you are not beautiful

00:26:09
and more valuable and rich

00:26:10
because of your experience.

00:26:12
It gives us an opportunity

00:26:15
to then extend that same

00:26:16
compassion to other people

00:26:18
because of what we've been through.

00:26:21
But it is definitely how you frame it.

00:26:24
In that grief conversation,

00:26:25
I have heard phrases like, well,

00:26:28
it's time for you to get over it now,

00:26:31
right?

00:26:31
Yeah.

00:26:32
Or, you know,

00:26:34
you need to get on with your life.

00:26:37
And those words are,

00:26:42
It can really serve as an

00:26:43
assault on someone who's

00:26:44
really working hard to move

00:26:47
forward because you don't

00:26:49
get over something just as you said,

00:26:51
right?

00:26:51
You learn how to carry that

00:26:53
with you in a way that can

00:26:56
be either good for your future or not,

00:27:01
depending on what path you choose.

00:27:07
So let's talk a little bit about that.

00:27:09
Let's turn the tables on you.

00:27:11
Let me turn the tables on you now, okay?

00:27:13
I love it.

00:27:14
Those are horrible lines.

00:27:15
You know,

00:27:15
it's time for you to get over it.

00:27:17
Whose watch,

00:27:18
whose time schedule are they on?

00:27:20
But what if we were talking and I said,

00:27:23
tell me one thing you want to celebrate.

00:27:27
What did your child bring into the world?

00:27:31
What did you learn?

00:27:32
Tell me something else.

00:27:33
What else makes you better?

00:27:34
What else did you learn?

00:27:36
And you continue the conversation and say,

00:27:39
how rich did you say thank you and,

00:27:42
and encourage the positivity.

00:27:44
And, and so the energy,

00:27:46
instead of being negative

00:27:48
and draining becomes one of

00:27:50
a celebratory of all the

00:27:52
beautiful gifts you were

00:27:53
given in the time you were together.

00:27:57
I can't imagine what it

00:27:58
would be like to go through that.

00:28:01
I know many people who have it, it is it's,

00:28:06
it's devastating, but,

00:28:08
Nothing is all good or all bad.

00:28:11
As my mother would say,

00:28:12
that's from the book too.

00:28:13
Nothing is all good or all

00:28:15
bad and nothing lasts forever.

00:28:19
That is, that is very true.

00:28:21
And, um, you know,

00:28:23
I always said that Stephen, for me,

00:28:27
Stephen was a gift.

00:28:28
And so the work that I do

00:28:29
now is my thank you.

00:28:32
Um,

00:28:32
That's beautiful.

00:28:34
And one of the other things,

00:28:36
just as a bereaved parent,

00:28:38
and I want to get your opinion on this,

00:28:41
because one of the things

00:28:42
that I found as a bereaved

00:28:43
parent as we journeyed through,

00:28:46
it is very difficult for

00:28:48
people to approach a

00:28:49
bereaved parent and communicate.

00:28:52
It's a difficult thing,

00:28:53
and I recognize it.

00:28:56
I have had friends who

00:28:58
struggled with my

00:29:00
relationship with them

00:29:01
after I lost Stephen

00:29:03
because they did not know

00:29:05
how to approach it.

00:29:06
And so one of the things

00:29:07
that I always say when I

00:29:09
meet a fellow bereaved parent is,

00:29:11
tell me about your son or your daughter.

00:29:14
What was their name?

00:29:16
One thing that I've noticed

00:29:17
over the years is

00:29:18
that when people tell me

00:29:19
that they're a bereaved parent,

00:29:21
they don't say their child's name.

00:29:23
And that's the first thing

00:29:24
that I always ask because

00:29:26
they are still the parent of that child,

00:29:29
right?

00:29:30
So we, I want to get to know this child,

00:29:32
not just you.

00:29:32
I want to get to know the

00:29:33
child so that to recognize

00:29:36
that they're not forgotten.

00:29:39
What would you say to some

00:29:40
people who have friends who've,

00:29:43
who've lost a loved one or

00:29:44
lost a child and how to approach them?

00:29:47
How,

00:29:48
how can not to be afraid to

00:29:50
reach out and have that

00:29:51
communication and some

00:29:52
words that they could use

00:29:53
to make that easier.

00:29:55
As I recognize that it is tough.

00:29:59
In apropos,

00:30:00
but you just said the three words,

00:30:01
say the name it's, it's so important.

00:30:04
And, and this,

00:30:05
this is true in chronic illness, in, in,

00:30:08
in bereavement,

00:30:08
you have bereavement and

00:30:09
chronic illness too.

00:30:11
And when people don't know what to do,

00:30:12
they do nothing.

00:30:13
And that's the biggest issue,

00:30:15
especially with Parkinson's disease.

00:30:17
Cancer, maybe not so much.

00:30:19
But when people can't talk,

00:30:22
they're not easily understood.

00:30:25
People just don't really

00:30:26
know what to say to the other person.

00:30:28
What do I say?

00:30:30
A lot of times I don't.

00:30:31
If I know the person well,

00:30:33
I just hug them.

00:30:34
And I say, you're in my prayers.

00:30:37
And I said, I'm celebrating your angel.

00:30:39
Yes.

00:30:40
Yes.

00:30:42
And things like that.

00:30:44
You know,

00:30:44
it depends upon how well you know

00:30:45
the person.

00:30:47
And sometimes you just don't

00:30:49
need to say anything at all.

00:30:51
Yes.

00:30:52
Just hug.

00:30:54
And that nonverbal

00:30:55
communication is just as important,

00:30:58
right?

00:30:58
That feeling of touch that

00:31:00
they're not alone.

00:31:02
Absolutely.

00:31:04
Because sometimes words

00:31:05
destroy the sanctity of the moment.

00:31:09
That is powerful and so true.

00:31:14
What about the written word?

00:31:15
I know that a great source of comfort.

00:31:19
So for me, my son was in college.

00:31:23
He was going into his senior

00:31:24
year at university when he passed.

00:31:27
And one of the most wonderful things that

00:31:29
these young boys, hockey players,

00:31:32
who didn't really know what

00:31:34
to say to me in person,

00:31:36
I received the most

00:31:37
beautiful letters from them

00:31:39
telling me stories, storytelling.

00:31:42
Stories are great.

00:31:44
Right.

00:31:44
And so storytelling.

00:31:45
And I and I remember meeting

00:31:49
this one particular boy

00:31:51
after I had received his

00:31:52
letter and just saying,

00:31:54
I can't tell you how

00:31:55
incredibly grateful I am.

00:31:57
He said, I just couldn't speak to you.

00:31:59
So I had to write it down.

00:32:00
And it was this five page

00:32:01
beautiful letter with all these funny,

00:32:03
funny stories about Stephen

00:32:05
that I never knew.

00:32:07
And I said,

00:32:08
you gave me an opportunity to

00:32:11
know my child,

00:32:13
a part of him that I never knew.

00:32:16
And I'm so incredibly thankful.

00:32:19
And so just the power of that,

00:32:21
to just tell anybody who's listening,

00:32:23
if you don't feel strong

00:32:25
enough to communicate

00:32:26
something like that in words,

00:32:29
because maybe you don't know the person,

00:32:31
but you know the person who's passed,

00:32:33
the power of a written word like that,

00:32:36
it's

00:32:37
It's impactful.

00:32:38
You can go back to it.

00:32:40
Right.

00:32:41
And go back to it again and

00:32:43
again and again, which I did.

00:32:46
So the power of the written

00:32:47
word is also there.

00:32:50
I want to leave the line to

00:32:52
the the thing I remember most.

00:32:54
I'll never forget the thing

00:32:56
I appreciate most about him.

00:32:59
You he loved you.

00:33:00
I mean,

00:33:01
that's wonderful to have somebody

00:33:02
come back.

00:33:03
Do you know how much he loved you?

00:33:05
Do you know how much he talked about you?

00:33:07
Things like that.

00:33:08
And your pancakes on Saturday morning?

00:33:11
Oh, we talk about that all the time.

00:33:14
You know, things like that.

00:33:16
But I believe in writing.

00:33:18
I believe very much in

00:33:19
writing because it gives

00:33:20
the person an option to refer.

00:33:23
Yes.

00:33:25
And not just writing to

00:33:29
share with another person,

00:33:30
but what do you think about

00:33:32
writing in a journal?

00:33:33
Like if they are working

00:33:34
through something like a chronic illness,

00:33:37
the power of words to

00:33:38
process their own emotions,

00:33:41
what do you think about that?

00:33:43
Enormously useful.

00:33:44
I do it too.

00:33:45
In fact,

00:33:46
when I was going through a bad

00:33:47
period in my life, my mother said,

00:33:50
write it down in a journal,

00:33:51
write down what you're thinking,

00:33:52
what you'd like to say.

00:33:54
And you never want to speak

00:33:55
when you're angry, when you're upset,

00:33:58
but it helps you reason,

00:34:00
and it also helps you track your growth.

00:34:03
It also helps you see that

00:34:04
life is not a straight line.

00:34:06
Some days you're up, some days you're down,

00:34:09
and that's okay.

00:34:11
That's called momentum.

00:34:12
Yes.

00:34:13
Yes, it is.

00:34:17
I want to jump into the

00:34:18
confidence quotient just a little bit.

00:34:21
Can you share your findings

00:34:23
on women's communication styles?

00:34:25
I'm very intrigued by this.

00:34:27
Okay.

00:34:27
This goes back many years ago.

00:34:29
In fact,

00:34:29
after I recorded the confidence

00:34:31
quotient in

00:34:38
They came out with the

00:34:39
confidence code a little bit,

00:34:41
and that was in twenty fifteen.

00:34:43
And I kind of smiled.

00:34:44
You know,

00:34:44
there's there's an issue about

00:34:46
being ahead of the bell curve sometimes.

00:34:49
And my thought from women,

00:34:51
I was driving one day and I

00:34:52
thought the biggest issue

00:34:53
between men and women in

00:34:55
communication is that women are.

00:35:00
they don't have the confidence.

00:35:02
They seek confidence.

00:35:03
And I don't know if this is,

00:35:04
and now we have to go back

00:35:06
and we can't talk about men

00:35:07
or women because it's not accurate.

00:35:09
It's about the right brain,

00:35:11
left brain and how we're wired.

00:35:13
But historically,

00:35:15
there was a predominance in

00:35:16
women in the confidence.

00:35:19
They look to others for self-validation.

00:35:22
Whereas, for example,

00:35:24
if there were a list of ten

00:35:28
qualities to get a job,

00:35:29
And maybe the woman had eight, perfect.

00:35:32
Nine, not so much.

00:35:34
Ten, not at all.

00:35:35
She wouldn't apply for the job.

00:35:36
But if a male, on the other hand,

00:35:38
came in and had four out of five,

00:35:39
good enough,

00:35:39
would go in and wouldn't even

00:35:41
think twice about it.

00:35:43
And men don't, historically,

00:35:45
and they've done research in this,

00:35:46
I haven't been up to date

00:35:47
on that because I've been

00:35:49
doing more with my Parkinson's family,

00:35:51
as I refer to them, the family.

00:35:54
But the...

00:35:56
even when men are suffering,

00:35:57
and this is what makes it

00:35:58
so hard for them, in loss as well.

00:36:01
Because historically,

00:36:04
men were always taught, boys don't cry,

00:36:06
boys don't cry.

00:36:07
Why don't they cry?

00:36:08
In our culture, everybody cries,

00:36:10
everybody hurts.

00:36:12
That's a sign of empathy.

00:36:13
It's a sign of compassion.

00:36:14
It's a sign of your

00:36:15
emotional intelligence.

00:36:17
But in work,

00:36:17
it was difficult for men

00:36:18
because if they had an issue,

00:36:21
they wouldn't talk.

00:36:22
And it can lead to a lot of

00:36:23
other issues as well.

00:36:25
So

00:36:26
Does that answer your question,

00:36:27
the confidence?

00:36:28
And then it's finding the

00:36:29
words and phrasing it appropriately.

00:36:32
I have a wonderful phrase

00:36:34
apropos of leading,

00:36:35
and you had mentioned this

00:36:36
before when you're talking

00:36:37
to people who are on

00:36:38
opposite sides of the table.

00:36:40
I have a colleague who

00:36:41
reminded me of this.

00:36:42
She always prefaces with,

00:36:44
you may not know this, or no,

00:36:47
you may already know this,

00:36:49
but this is what I just heard.

00:36:51
So it defers to the other person.

00:36:53
It's a way of honoring a

00:36:55
person's knowledge,

00:36:56
which greatly exceeds yours, maybe,

00:36:58
maybe not.

00:36:59
But at least you play to

00:37:01
that ego and it invites the listen.

00:37:04
It invites the listen.

00:37:05
And that's the important part.

00:37:07
With regard to women,

00:37:08
it's important to own what you're saying.

00:37:10
And in the end, there'll always be people.

00:37:13
We see that on television

00:37:14
all the time now.

00:37:15
It'll be very interesting to

00:37:17
see from a linguistic standpoint,

00:37:21
I'm looking forward to

00:37:22
seeing the male and the

00:37:23
female address this issue

00:37:26
in a way that the male

00:37:29
probably hasn't encountered

00:37:30
a female that's capable of standing up.

00:37:33
And I'm anxious to see this

00:37:35
from a speaker's standpoint

00:37:37
in structuring the argument

00:37:39
without going too deeply

00:37:40
into the topic of conversation.

00:37:41
You know what I'm talking about?

00:37:45
It's important to own the word.

00:37:47
I don't have to do something.

00:37:49
I choose to

00:37:50
I want to, I'm doing,

00:37:53
this is what I'm doing this.

00:37:54
Do you have to?

00:37:55
No, but I want to,

00:37:58
to own what you're going to do.

00:38:00
There are lots of others.

00:38:02
They don't come to me right at this point,

00:38:04
but that's to be confident,

00:38:05
to hold your ground.

00:38:06
And it's not just in what you say.

00:38:09
It's when you walk into a room.

00:38:12
Are you upright?

00:38:13
Are you shuffling?

00:38:14
How do you stand in front of the camera?

00:38:16
How do you stand on stage

00:38:18
when you come out?

00:38:19
You don't have to say anything at all.

00:38:21
People can take one look at

00:38:22
your stride and they know

00:38:24
if you mean business or if

00:38:25
you're uncertain.

00:38:27
So there's so much that goes into it.

00:38:29
And start with the posture.

00:38:32
Absolutely.

00:38:35
Own it.

00:38:35
Say thank you.

00:38:37
Thank you for listening.

00:38:40
You want to invite that listen.

00:38:43
You want them to.

00:38:44
You set the tone.

00:38:46
You have to set the tone.

00:38:49
And it's just about kind of

00:38:50
opening up that dialogue

00:38:52
and giving people... Because some people,

00:38:54
depending on who you're speaking to,

00:38:57
some people enter into a

00:38:58
conversation with a certain

00:38:59
mindset of how things will go.

00:39:01
So by you using those words,

00:39:04
you are then saying,

00:39:06
I'm open to your ideas.

00:39:08
I'm open to listening to

00:39:09
what you have to say.

00:39:11
And I'm comfortable enough

00:39:12
in my own space to do so.

00:39:15
I'm not...

00:39:15
I'm not putting up any walls

00:39:17
because I want to learn from you.

00:39:19
Apropos of that, what you just said,

00:39:24
when women come out, they don't,

00:39:27
and that thought just went

00:39:28
out of my mind as you were saying that,

00:39:33
they don't own what they say.

00:39:35
And we'll go back to it.

00:39:37
I'll come back to it.

00:39:38
It just completely went out of my mind.

00:39:40
No worries.

00:39:41
I apologize.

00:39:42
It's

00:39:44
So when someone is struggling,

00:39:48
it could be someone with a

00:39:50
challenging workplace,

00:39:52
something that was happening at home.

00:39:56
What would you say to them?

00:39:58
Where do I start?

00:40:00
Where do I start?

00:40:01
How do I...

00:40:02
How do I find the words to

00:40:05
work through a difficulty?

00:40:08
How would you guide someone

00:40:09
if they are really

00:40:10
struggling right now and

00:40:12
struggling to communicate what they need?

00:40:17
I'm not a coach.

00:40:18
The first thing I would say

00:40:19
though is deep breath, time out,

00:40:21
deep breath, deep breath.

00:40:23
Okay,

00:40:23
now let's think about everything

00:40:25
that's good in your life right now.

00:40:28
Let's think about something

00:40:29
that's positive.

00:40:32
When I talk about dementia,

00:40:33
I say that people spend a

00:40:34
lot of time lamenting what

00:40:36
was and will never be.

00:40:38
And then in a moment of clarity,

00:40:39
they go forward and they go to the dread.

00:40:41
And in the interim,

00:40:42
they're missing the present,

00:40:43
which is all we have.

00:40:44
And it's important to grab

00:40:46
on for everything that we have right now.

00:40:49
I encourage people to take

00:40:50
time out and to take care of themselves.

00:40:53
And to be clear, if people say,

00:40:55
let me know if I can help.

00:40:57
Have an answer.

00:40:59
Have an answer.

00:41:00
Say, I'd be most grateful.

00:41:01
Do you think you could be

00:41:03
with him or with her from

00:41:05
nine to twelve on Tuesday?

00:41:08
And set that up,

00:41:09
even if it's only for a week.

00:41:11
But have a schedule like that.

00:41:13
And if that person could

00:41:14
come for three hours,

00:41:15
then you march yourself out

00:41:17
and you do something to take care of you.

00:41:19
Because you can always hire

00:41:20
people to take care of other people.

00:41:22
You can't hire people to

00:41:24
provide the familial love.

00:41:26
They may be great caregivers.

00:41:27
They may love with all their hearts.

00:41:30
but they can't be the spouse.

00:41:31
They can't be the parent.

00:41:32
They can't be the child.

00:41:34
You have to guarantee your

00:41:37
own health so that you can

00:41:38
continue to give.

00:41:41
And so have you found that

00:41:42
that is a struggle for,

00:41:46
for people to ask for help

00:41:47
in situations like that?

00:41:49
Is that, they don't, they don't, yeah,

00:41:52
they don't, I don't think they have,

00:41:53
they don't have formulated

00:41:54
an answer because it's,

00:41:56
It's kind of like pro forma.

00:41:58
Oh, is there anything I can do to help?

00:41:59
Thank you very much.

00:42:00
No, not at this time.

00:42:01
But we all know that's not true.

00:42:03
That's not true at all.

00:42:05
And sometimes you can offer

00:42:07
services or offer other things.

00:42:10
And you can bring food.

00:42:11
You can do all kinds of

00:42:12
things that will be appreciated.

00:42:14
But people just can't think

00:42:16
of it at the time.

00:42:17
And as I say,

00:42:17
it's incumbent upon those who

00:42:19
are in need to indicate the

00:42:21
need because people do like to give.

00:42:24
There are people out there

00:42:25
who like to monopolize giving.

00:42:27
They never want to receive anything.

00:42:29
We all have ones like that.

00:42:30
A few friends, right?

00:42:31
You can't give them anything.

00:42:36
They have to be the givers all the time.

00:42:38
And they deprive the other

00:42:39
person of that opportunity,

00:42:40
that joy in giving.

00:42:43
Yes, that's so true.

00:42:44
And I change the words, too.

00:42:45
You asked about words that we use.

00:42:48
When you're dealing with, and as I say,

00:42:50
I don't call it end of life.

00:42:51
I refer to it as closing the

00:42:53
circle of life.

00:42:54
And I'm not circumventing,

00:42:56
I'm not talking about

00:42:58
reality euphemistically,

00:43:00
but people will come to me

00:43:01
when they know that the

00:43:02
person is not going to be

00:43:05
with them much longer.

00:43:06
And they'll say, for example,

00:43:08
a woman said to me, his eyes are closed,

00:43:11
he's not talking,

00:43:12
it's like he's sleeping all the time.

00:43:14
And I said, he's not sleeping,

00:43:15
he's packing.

00:43:17
And she looked at me and she said,

00:43:19
I feel so good.

00:43:21
That's such a good thought, he's packing.

00:43:24
And we know that people are

00:43:26
going through their minds.

00:43:27
We know that they're sorting.

00:43:29
They're evaluating what

00:43:31
their value was as they transition.

00:43:34
People talk when people don't eat.

00:43:35
This is an important thing

00:43:37
towards end of life.

00:43:37
And, oh, I could write a book on things.

00:43:40
They talk about starving.

00:43:42
People at end of life never,

00:43:44
ever starve to death.

00:43:45
They cycle down.

00:43:46
They move into a higher level,

00:43:48
a euphoric level.

00:43:49
But people don't realize that.

00:43:52
Not to be impertinent, but I say it's

00:43:54
they move into that upper level,

00:43:55
kind of like what people

00:43:56
paid big bucks for in the

00:43:58
sixties and the seventies,

00:44:00
move them into that.

00:44:00
And people laugh, but when they laugh,

00:44:03
that's a good thing because

00:44:04
it's a release of tension

00:44:06
and they're willing to accept that.

00:44:08
And then I say,

00:44:09
they're not going to suffer.

00:44:11
I said, listen, I can't, a woman said,

00:44:14
I can't let my mother die.

00:44:15
She's not eating.

00:44:15
She can't swallow.

00:44:16
She won't eat.

00:44:17
And I said, what is it?

00:44:17
Is she not swallowing or not eating?

00:44:19
There's a difference.

00:44:20
She didn't know what it was.

00:44:22
And I said,

00:44:22
there's a difference between saying,

00:44:24
would you like some lime jello?

00:44:26
It looks so good.

00:44:27
And her going, uh-huh.

00:44:29
And her saying, geez,

00:44:31
I could go for a Reuben.

00:44:32
Those are two different things.

00:44:34
I said, watch her.

00:44:35
She'll tell you what she wants.

00:44:37
She doesn't need a lot of

00:44:38
that food right now.

00:44:40
And giving people food isn't

00:44:42
going to tether them to life any longer.

00:44:45
No.

00:44:45
They will let you know what they need.

00:44:48
Very often in the medical field,

00:44:49
I hear this all the time.

00:44:50
People will say they've

00:44:51
forgotten how to swallow.

00:44:53
Please don't say forgotten.

00:44:55
It's like indicating that

00:44:57
the person has yet another malady.

00:44:59
I always say the body is no

00:45:01
longer communicating.

00:45:02
It's no longer telling them

00:45:04
that they're hungry because

00:45:05
they don't need to eat.

00:45:06
They're moving to a different level.

00:45:09
It just, you know,

00:45:10
when you say that something's not working,

00:45:12
the first impulse is to how

00:45:14
can we fix it?

00:45:14
How can we make it better?

00:45:17
You don't want to invite that guilt like,

00:45:20
what can I do?

00:45:21
And to the listeners, I say this,

00:45:23
we may not do it all right,

00:45:26
but we're not doing it all wrong either.

00:45:28
We do the best we can.

00:45:30
And as we learn more,

00:45:31
we do more and we do better.

00:45:33
So we have to be kind to ourselves too.

00:45:37
That is so powerful.

00:45:40
And you're normalizing the

00:45:42
experience for people

00:45:44
because you're telling them

00:45:46
that this is just a part of

00:45:48
that normal transition.

00:45:50
I'm still,

00:45:50
I'm fixated on this comment of

00:45:53
their packing.

00:45:54
I just think that's so

00:45:55
incredibly beautiful.

00:45:58
And it does,

00:45:59
it just gives you that

00:46:00
peaceful feeling of them

00:46:02
kind of doing that life

00:46:03
review and they're getting

00:46:06
ready for their next chapter.

00:46:10
Yeah, such peace with that statement.

00:46:14
What has been,

00:46:15
this is a bit of a different question,

00:46:18
what has been the most

00:46:19
surprising thing that

00:46:20
you've learned about

00:46:21
yourself from your life work?

00:46:27
How long it took me to get a

00:46:28
five-year plan that my

00:46:30
uncle told me about fifty years ago.

00:46:33
And now I've got so many five-year plans.

00:46:36
My hope is that I can live

00:46:37
long enough to implement

00:46:39
them all and leave

00:46:40
something behind for the others.

00:46:42
Oh my gosh.

00:46:42
I'm part of that club too.

00:46:44
We're good.

00:46:45
Oh my goodness.

00:46:46
You know what?

00:46:46
The most frightening thing

00:46:47
is how much I don't know.

00:46:50
And I think, oh,

00:46:51
I got this far and I didn't know that.

00:46:54
And then you just wonder how

00:46:55
much more you don't know.

00:46:56
I think that the fear factor

00:46:58
and how much more there is to learn.

00:47:01
Yeah.

00:47:01
I guess it's a good thing, but-

00:47:04
it can be a little unnerving.

00:47:06
I mean, and I think it is a good thing.

00:47:09
And I think, and back to what I mentioned,

00:47:13
my husband's father,

00:47:15
one of the things that I

00:47:16
loved about him is even in

00:47:18
his advanced stages of dementia,

00:47:20
he was still curious.

00:47:23
And that's what I want.

00:47:25
I want to be right to the last day.

00:47:28
I want to stay curious.

00:47:30
And yes,

00:47:30
I have about thirty five year

00:47:32
plans as well.

00:47:33
That I have to tackle.

00:47:36
But we'll get there.

00:47:37
But to stay curious in life

00:47:39
and to realize that we

00:47:41
don't have it all figured

00:47:42
out and that there is so

00:47:44
much more to learn and that

00:47:45
we can learn from each other.

00:47:48
And that in order to do that,

00:47:50
that we have to connect face to face,

00:47:52
word to word.

00:47:53
Yeah.

00:47:54
It's that's such a it's a

00:47:56
promising kind of kind of vision,

00:47:59
isn't it,

00:47:59
for the future that we have that

00:48:01
opportunity.

00:48:02
It's always there for us.

00:48:03
We just have to connect with

00:48:04
another person through the

00:48:05
power of words.

00:48:08
I agree.

00:48:08
My mother had another piece

00:48:10
of wisdom that I'll share with you.

00:48:11
I call it universal exoneration.

00:48:13
And this gets us through the day.

00:48:14
You'll use this, Kelly.

00:48:15
I use it daily.

00:48:17
She used to say to me,

00:48:18
did you make a mistake?

00:48:18
And I'd say, oh, yeah.

00:48:20
And she said, did you learn from it?

00:48:22
And I'd say, oh, yeah.

00:48:23
And she'd say, good,

00:48:24
take your lesson and move on.

00:48:26
That's what they call life.

00:48:27
That's what you're here for.

00:48:28
Nobody was born with all the answers.

00:48:30
You're here to make mistakes.

00:48:32
They're learning experiences.

00:48:34
Take your lesson and move on.

00:48:37
Oh, that's beautiful.

00:48:39
I fall with that.

00:48:41
Mom's universal exoneration.

00:48:45
I am going to use that.

00:48:47
So just to finish off,

00:48:49
I have a global gratitude

00:48:51
group that a lot of people

00:48:53
that I work with are in.

00:48:54
It's called Just One Little Thing.

00:48:56
And the concept of One

00:48:58
Little Thing started for

00:48:59
our family early in our grief.

00:49:02
We knew that things weren't

00:49:03
okay at the time.

00:49:05
We were very depressed.

00:49:07
broken and,

00:49:08
and knew we were going to be

00:49:10
okay together,

00:49:10
but we had to find a way through.

00:49:12
And we decided that we were

00:49:13
going to use gratitude in

00:49:15
the little things because

00:49:17
we couldn't find the big

00:49:18
things at that moment in time, you know,

00:49:20
things were so tough.

00:49:21
So we said,

00:49:21
if we can find just one little

00:49:24
thing each day to be thankful for,

00:49:26
we're going to get through.

00:49:27
So each day we would look

00:49:29
for our one little things

00:49:30
and they were very simple.

00:49:33
One day for me,

00:49:35
I was able to go to the mailbox.

00:49:37
I was able to walk to my mailbox.

00:49:38
I felt strong enough to do that.

00:49:40
That was one little thing for me.

00:49:42
One little thing for my son

00:49:44
was a good day at school

00:49:45
where things went as

00:49:47
planned and he felt happy

00:49:51
that day or my husband at work.

00:49:54
So we did that on a daily

00:49:55
basis and that's what I

00:49:56
challenge people within the group.

00:49:58
What is one little thing

00:50:00
you're thankful for today?

00:50:01
Today, I have several little things.

00:50:03
It's the beauty of a fall,

00:50:06
sunny morning in the south

00:50:09
with cooler temperatures.

00:50:12
But I am so incredibly

00:50:14
thankful for getting to

00:50:16
know your mother a little

00:50:17
bit better on this podcast.

00:50:20
oh my goodness,

00:50:20
I can't wait to read the

00:50:23
rest of those twenty

00:50:25
thoughts because she sounds like a force.

00:50:32
Just so beautiful.

00:50:33
So thank you for letting me

00:50:35
get to know her in this short time.

00:50:38
So what is your one little

00:50:40
thing for today?

00:50:42
Oh, every day I have a list.

00:50:43
I always, and it's Sunday,

00:50:46
I always am grateful for the little

00:50:50
aches and pains, a little contrivances,

00:50:52
inconveniences that have,

00:50:54
because contrast defines

00:50:56
that helps me to remember

00:50:58
all the other things that

00:50:59
aren't going wrong.

00:51:01
Yes.

00:51:02
Contrast defines.

00:51:05
That'll be in my book of twenty.

00:51:07
Contrast defines.

00:51:09
But, you know, in those, you know,

00:51:10
you can lament things,

00:51:11
but there are so many other things.

00:51:14
The fact that you can put

00:51:15
one foot in front of the

00:51:15
other and go where you want,

00:51:17
when you want.

00:51:18
Because there was a time when I couldn't,

00:51:21
like you going to the mailbox.

00:51:23
Right.

00:51:23
And so I'm always grateful

00:51:26
for things like that to be

00:51:28
mindful of what I'm able to

00:51:30
do when there are other

00:51:31
people who can't do that.

00:51:33
Exactly.

00:51:35
So Susan, before we finish,

00:51:37
I just want you to let

00:51:40
everyone know how they can

00:51:41
find you and your work.

00:51:44
and learn a little bit more

00:51:45
about this and also about

00:51:48
your writings and your TED

00:51:50
Talks and stuff as well.

00:51:52
So where can we find Susan online?

00:51:56
Okay.

00:51:56
Just look under Susan,

00:51:58
middle initial Ironic, W-R-A-N-I-K,

00:52:01
as in isn't it ironic?

00:52:03
Okay.

00:52:04
Spelled differently.

00:52:05
You'll find on my cover page,

00:52:07
you'll find an ACA Talk, the

00:52:12
You'll find access to my TED Talk.

00:52:14
It'll tell you how to get in

00:52:15
touch with me if you want a

00:52:16
copy of the book.

00:52:18
Don't forget to say thank you.

00:52:20
I'm the sole source for that.

00:52:21
Twenty Thoughts to Guide You

00:52:22
Personally and

00:52:23
Professionally Through Life.

00:52:25
And if anybody is interested

00:52:27
in attending my program,

00:52:28
I'm not sure you're even aware of this,

00:52:29
Kelly, but I invite you to.

00:52:32
I started a program during

00:52:33
the pandemic to keep everyone together,

00:52:35
to keep them positive.

00:52:37
As we battened down the

00:52:38
hatches and figured out what was next,

00:52:40
we came into it as a group.

00:52:41
We're going to get out of it as a group,

00:52:43
as a world force.

00:52:45
And the name of the program

00:52:46
is Thursdays at three.

00:52:48
That would be three Eastern time.

00:52:51
If you're interested in participating,

00:52:54
there's no fee.

00:52:55
It's an option.

00:52:56
It's not an obligation.

00:52:58
It's our hour each Thursday to relax,

00:53:01
to reflect,

00:53:03
and to build relationships to

00:53:06
help us be better,

00:53:07
help one another be better

00:53:09
versions of ourselves

00:53:10
personally and professionally.

00:53:11
So I invite everyone to come.

00:53:13
Send me an email if you'd

00:53:14
like to be added to the mailing list.

00:53:17
Oh, that sounds wonderful.

00:53:19
That sounds wonderful and so needed.

00:53:22
Susan,

00:53:22
thank you so much for coming on the show.

00:53:25
I really appreciate all the

00:53:26
wisdom that you've shared with us today.

00:53:29
Kelly, thank you for the opportunity.

00:53:31
And in closing,

00:53:32
can I remind everybody that

00:53:34
our potential for

00:53:35
improvement is infinite?

00:53:37
Thanks, Mom.

00:53:41
Thank you, Mom.

00:53:42
Okay, everyone, thanks for tuning in.

00:53:45
Take care.

00:53:47
Bye-bye.

00:53:47
Thank you.

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